Today is #RareDiseaseDay and I want to take a moment to celebrate my beautiful niece, Navy Grace 💜…

Today is #RareDiseaseDay and I want to take a moment to celebrate my beautiful niece, Navy Grace 💜 Navy is one of approximately 40 children in the world with an ultra-rare neurological disease called MCOPS12, a mutation of the RARb gene. There is currently no cure. What can YOU do to help?! Donate to a drug repurposing study that could have a huge impact on these kiddos. https://give.rarevillage.org/campaign/a-cure-for-sophia-and-friends/c531407 We are obsessed with our Navy girl! She is the sweetest + funniest + smiliest little lady ✨ #CureMCOPS12 @acureforsienna @rare_mamas @rarediseasedayofficial @jaclynmgarrett

By Shannon Murphy

Published October 7, 2026

From the Voice Care Champions 🎤 community. Join a community dedicated to vocal health and care, sponsored by Henry Ford Health. Perfect for radio hosts, singers, and anyone who uses their voice professionally.

Posted in Vocal Health Tips 💡. Share and learn vocal health tips to maintain a strong voice, aligning with Henry Ford Health's care objectives.

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